The Rare Disease Podcast
Interviews with patients, clinicians, advocates, students, researchers focusing on rare disease in clinical medicine. This podcast is brought to you by Medics4RareDiseases who are asking medical professionals to #daretothinkrare in order to improve diagnosis, clinical care and research in this neglected but really important field of medicine. 350 million people in the UK live with a rare disease so while each disease is individually rare, together rare diseases are common.
The Rare Disease Podcast
Episode 6: Dr Shanali on identity
Dr Shanali Perera is a contemporary artist, educator, writer and retired clinician. She lives with a rare condition called vasculitis - a rheumatological condition that first presented when Shanali, herself, was training as a Rheumatologist.
In this episode we discuss identity. How our different identities interplay with each other in different environments. How Shanali felt as a patient, rather than a doctor in her speciality and what he learned from this experience. How our identities are affected by illness and how the little ways we express ourselves help us hold on to who we are during turbulent times.
There is a lot to learn from Shanali and this episode just scratches the surface.
Shanali's website in which you can see her art: www.changinglanes.me
See Me Hear Me campaign by Vasculitis UK: https://www.vasculitis.org.uk/news/see-me-hear-me
Digital booklet about ANCA-associated vasculitis: https://online.flippingbook.com/view/730582/
Views, ideas and opinions expressed in this podcast are personal to the individual and Medics4RareDiseases does not accept responsibility for those expressed by guests.
M4RD receives funding from commercial companies which it works independently from. M4RD's Partners and Funders do not accept responsibility for any views expressed in this podcast.
M4RD does not endorse any companies or products that it receives sponsorship from. For more information please see the show notes and www.m4rd.org/sponsors #DareToThinkRare