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The Invisible Cancer - Bringing Visibility to Neuroendocrine Cancer
The Invisible Cancer Podcast raises awareness of neuroendocrine cancer, a cancer most people have never heard of, and this lack of awareness can affect diagnosis, treatment, and care. Through real-life stories, expert insights, and practical advice, we explore the challenges patients face, from initial diagnosis to management, including the impact on mental health and ongoing follow-up.
Hosted by Lisa Walker and produced by Neuroendocrine Cancer UK, this podcast shines a light on neuroendocrine and other often-overlooked cancers, offering information, support, and connection to anyone affected.
The Invisible Cancer - Bringing Visibility to Neuroendocrine Cancer
Neuroendocrine Cancer UK Explores RareCan's Innovative Research Platform
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Welcome to the latest episode of the "Not Just NE Cancer Takeover Series." Following our successful launch last week, this series continues to delve into the world of neuroendocrine cancer research, with a specific focus on our newly introduced 'Advancing Neuroendocrine Cancer Research' campaign.
In this second episode, Campaigns Lead Lisa engages in a compelling discussion with Andy Hall, Co-founder & Chief Scientific Officer of RareCan. RareCan, a digital health company, has created an inclusive community of members who willingly share valuable information about their cancer experiences. By building cohorts, this platform empowers patients and enables researchers to locate them with a simple keystroke. Additionally, RareCan, established in 2020, provides a suite of member-designed tools that assist individuals in managing their lives while living with rare cancers.
The significance of RareCan lies in its ability to streamline the research process by facilitating the identification of individuals diagnosed with neuroendocrine cancer each year. This episode delves into the unique challenges faced within the realm of rare cancer research and sheds light on the innovative approaches undertaken by the RareCan research platform. Join Lisa and Andy as they discuss these challenges and explore the ways in which RareCan is striving to overcome them, all while offering individuals within the neuroendocrine cancer community the opportunity to actively participate in research.
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