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From The Heart: The HeartKids Podcast
Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease.
We'll tackle the big issues - what it's like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us living with CoHD.
Your hosts are Rachael Knowles, a young adult with CoHD, and Sami Glastonbury, a mother of two children with CoHD.
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for all people impacted by CoHD.
From The Heart: The HeartKids Podcast
PPA2: Rare Genetic Conditions - Danielle Green's Story
In this episode of "From the Heart," join our host, Sami, for a conversation with Danielle Green.
Danielle is a mother to two children, Sonny and Airlie, who have both passed away due to a rare genetic condition known only as PPA2.
Sami and Danielle chat about Danielle and her husband Leon's journey with this extremely rare condition, advocating for genetic testing and counselling, and the importance of family and community during the most difficult of times.
A content warning: This episode will touch on grief, and bereavement that some may find challenging.
If you choose to listen, please listen in a safe space and remember you can pause if you need to.
HEARTKIDS
From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected by childhood-onset heart disease.
For support, information or guidance on your CoHD journey, call the HeartKids Helpline on 1800 432 785 or visit the website at https://www.heartkids.org.au
OUR RARE LIFE
Danielle and Leon run Our Rare Life, a group to raise awareness and platform rare genetic conditions.
Head to their instagram page here, and be sure to check their link in bio for more resources and information about rare conditions.
CREDITS
Host: Sami Glastonbury
Guest: Danielle Green
Producer: Melissa Clarke