Safe Harbor: A Podcast for Parents of Children with Disabilities

Episode 13 -An Interview with Laura Will, on Parenting a Child with a Disability, and being a Dragon Mom

Theresa Bartolotta Season 1 Episode 13

I am so excited to welcome Laura Will to the podcast. In the last episode I interviewed the co-founders of Know Rare - Nina and Jack Wachsman, and today I have an interview with Laura Will, who writes blogs about the parental experience for knowrare.com as well as leading their patient advocate team.

This is a very special interview - Laura, a trained nurse practitioner, talks about her personal experience as mom to her 2-year-old son Alden who has a rare disease. She is a gifted writer and a poet and you’re in for a treat - she shares her beautiful poetry that will move you - I assure you. She also does volunteer work and has started a local support group in the Cape Cod Massachusetts area for parents of children with medical complexity or disability.

Laura will inspire you with her actions to support families along with her moving words. Here's how to find her:

Laura’s website: adragonmomswords.com

And also look for Laura’s posts on the Know Rare blog - knowrare.com/blog

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