Multispective

041 From Muscles to Bones: An Unstoppable Genetic Disorder

January 15, 2024 Episode 41
041 From Muscles to Bones: An Unstoppable Genetic Disorder
Multispective
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Multispective
041 From Muscles to Bones: An Unstoppable Genetic Disorder
Jan 15, 2024 Episode 41

In this episode, we explore the story of Joe Sooch, who shares his heartbreaking story of living with a rare condition called "Fibrodysplasia Ossificans Progressiva" (FOP), where the body’s muscles slowly and progressively turn into bones. In contrast to our previous episodes this time it's impossible to overcome this condition but still Joe offers a glimpse into his extraordinary life, showcasing unwavering strength in the face of adversity. We delve deep into this story from what it means medically, all the complications that come with FOP, and his general view on life; his story brings to light the indomitable spirit that defines Joe's journey with FOP.

Link to Joe's podcast: Spotify

Support the Show.

Additionally, you can now also watch the full video version of your favourite episode here on YouTube. Please subscribe, like or drop a comment letting us know your thoughts on the episode and if you'd like more stories going forward!

If you would like to offer any feedback on our show or get in touch with us, you can also contact us on the following platforms:

Support the show: https://www.patreon.com/multispective

Producer & Host: Jennica Sadhwani
Editor and Engineer: Chris Trzcinski
Editor, Marketing & Admin: Stephan Menzel

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Show Notes

In this episode, we explore the story of Joe Sooch, who shares his heartbreaking story of living with a rare condition called "Fibrodysplasia Ossificans Progressiva" (FOP), where the body’s muscles slowly and progressively turn into bones. In contrast to our previous episodes this time it's impossible to overcome this condition but still Joe offers a glimpse into his extraordinary life, showcasing unwavering strength in the face of adversity. We delve deep into this story from what it means medically, all the complications that come with FOP, and his general view on life; his story brings to light the indomitable spirit that defines Joe's journey with FOP.

Link to Joe's podcast: Spotify

Support the Show.

Additionally, you can now also watch the full video version of your favourite episode here on YouTube. Please subscribe, like or drop a comment letting us know your thoughts on the episode and if you'd like more stories going forward!

If you would like to offer any feedback on our show or get in touch with us, you can also contact us on the following platforms:

Support the show: https://www.patreon.com/multispective

Producer & Host: Jennica Sadhwani
Editor and Engineer: Chris Trzcinski
Editor, Marketing & Admin: Stephan Menzel

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