Living with Long covid

This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.

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Living with Long covid

Robbie Williams....Why?

August 06, 2023 • Julie

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Many of you may have seen the news recently, headlines stating Robbie Williams had to stop a gig after only 3 songs; allegedly because he was exhausted and said, it is because he has Long Covid.
The Long Covid community reached out online and showed support and care however shortly after this in a video interview, Robbie Williams allegedly stated he uses Long Covid "as a joke". Like many of the millions living with Long Covid, I did not find this "joke" funny at all. I actually think it highlights the misconception and poor education around Long Covid, and highlights the continued stigma of this disabling condition.
I therefore wanted to discuss how actions such as this are not only hurtful but also harmful to the Long Covid community. I would not imagine any other long term disabling condition would have been used in such poor taste.
I invite Robbie Williams to explain his alleged comments and offer to speak with him, to educate him on the impact Long Covid is having on millions of lives from children to adults and older adults, Long Covid certainly does not discriminate.
We cannot control the actions of others but we can offer education and continue to raise awareness of Long Covid.
I hope this episode is useful, please consider sharing and tag in Robbie Williams in the hope he can reflect on his alleged comments and actions and possibly apologise to the millions of people this has caused upset.
As always, one day at a time, take care

My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information

Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you
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