Returning guests; Patrick Ussher and Peter Deen; The myth of primary polydipsia, challenging medical gaslighting with science Artwork

Living with Long covid

This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.

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Living with Long covid

Returning guests; Patrick Ussher and Peter Deen; The myth of primary polydipsia, challenging medical gaslighting with science

November 17, 2024 • Season 1 • Episode 102

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In this episode I have returning guests; Patrick Ussher a person living with ME/CFS for the last 6 years, he has a Youtube channel "Understanding ME/CFS" in which he talks about research into ME/CFS and Long Covid in an accessible way. He has written a medical hypothesis on the potential cause of excessive thirst following being misdiagnosed with psychogenic water drinking. I also have Peter Deen, whom is the founder of a start up company Streasure4health, Streasure4Health is developing an objective diagnosis and scalable diagnostic sensor for LongCovid and ME/CFS, which are rooted in their underlying mechanisms. It has developed an innovative approach to clinically map metabolic stress for the first time.
Following on from the last podcast we discuss Patrick's personal journey with ME/CFS, how he had excessive thirst and would drink up to 20 litres of fluid per day. Patrick explains how this led to medical gaslighting following a hospital admission and subsequently his journey to his book "The myth of primary polydipsia" which is free to download, press on the link below for your copy.
Peter subsequently contacted Patrick and they have collaborated since. Listen to this episode of the podcast to find out more, and check out the links below.
As always thank you for listening to the podcast, take care #onedayatatime.

Links from this episode:

More information on Patrick Ussher:
https://www.patrickussher.com

Patrick Youtube channel; Understanding ME/CFS:
https://www.youtube.com/channel/UC8p46sk36RDASjeGHhF9G1A/

Free book to download - The Myth of primary Polydipsia by Patrick Ussher:
https://www.themythofprimary.polydipsia.com

Book - Waterlogged by Tim Noakes:
https://g.co/kgs/kQ7uQuP

Medow study on Oral Rehydration Solution in POTS as effective as saline IV:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6815702/

Downregulation of Renin-Angiotensin-Aldosterone System (salt retention hormonal network) in ME/CFS:
https://pubmed.nc

My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk for more information

Episode sponsor; Turnto - This is a brilliant app, a one stop shop to support anyone living with, caring for or supporting and additionally professionals working with people living with Long Covid and or MECFS - please mention The Long Covid podcast n the "how did you hear about us" section, thank you
https://turnto.ai/download?utm_source=link&utm_medium=share&utm_campaign=livinglongcovidpodcast

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