Dr. Scott Ernst & Dr. Femida Gwadry Sridhar- The Global Melanoma Research Network Artwork

Real Talk, Real World Data

“Real Talk, Real-World Data” is an original podcast series developed by Pulse Infoframe and hosted by Joshua Henderson, Head of Rare Diseases. Our show features patients and patient advocates, industry and researchers and their unique perspectives on the incredible potential of registries, natural history studies, and other real-world data.If you want to hear meaningful conversations about the value, the challenges and the impact of real-world data, then this is the place for you. Stay tuned for updates on new episodes and guests as well as highlights from the show.

All Episodes

Real Talk, Real World Data

Dr. Scott Ernst & Dr. Femida Gwadry Sridhar- The Global Melanoma Research Network

January 19, 2023 • Pulse Infoframe • Season 1 • Episode 7

Back in 2013, Dr. Scott Ernst and Dr. Femida Gwadry-Sridhar both recognized some problems with the way people were conducting research for melanoma. Collaboration was lacking and crucial patient data was being siloed and not shared amongst the research community, which prevents the full potential of this data from being realized.

The two teamed up to create the Global Melanoma Research Network (GMRN). The first collaborative research network for melanoma and worked alongside different cancer centers across Canada begin collecting, centralizing and standardizing their melanoma patient's data. Today, the registry has grown to be one of the largest melanoma patient registries in the world with over 5,000 patients. Dr. Ernst continues to publish findings from the registry and care for Canadians living with melanoma. While Dr. Gwadry-Sridhar created Pulse Infoframe which specializes in building registries and natural history studies similar to GMRN.

Join Dr. Scott Ernst, Dr. Femida Gwadry-Sridhar and Joshua as they break down why and how they went about creating GMRN, the difference it has made for melanoma research and the patient community, as well as where they hope to take this registry in the future.