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Jessica Fein

Jessica Fein is the mother of three children, one of whom died from the rare mitochondrial disease MERRF Syndrome. She's also a writer, a corporate VP, and a rare-disease advocate. Not a day goes by without someone saying to her, "I don't know how you do it." She's on a quest to understand what makes some people's lives seem so unimaginable and how those people thrive in extraordinary circumstances. 

Her memoir, Breath Taking: A Memoir of Family, Dreams, and Broken Genes, will be published May 7, 2024 and is available for pre-order here