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Susan MSUD chair for PKU and Allied Disorders talks about MSUD

July 02, 2023 Joanna
Susan MSUD chair for PKU and Allied Disorders talks about MSUD
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Rare Connection
Susan MSUD chair for PKU and Allied Disorders talks about MSUD
Jul 02, 2023
Joanna

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This video is the third episode of Nutrition Equity a podcast devoloped to promote the Medical Nutriiton Equity Act .  In this episode we talk with Susan Neeleman of the MSUD Community.  Susan is the Vice President of the New England Connection for PKU and Allied Disorders (NECPAD), the editor cf tShe is a powerful leader in the MSUD as well as the Metabolic Community as s whole.  She MSUD Family Support Group news letter, and she is also the MSUD Chair in Canada.

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Send us a Text Message.

This video is the third episode of Nutrition Equity a podcast devoloped to promote the Medical Nutriiton Equity Act .  In this episode we talk with Susan Neeleman of the MSUD Community.  Susan is the Vice President of the New England Connection for PKU and Allied Disorders (NECPAD), the editor cf tShe is a powerful leader in the MSUD as well as the Metabolic Community as s whole.  She MSUD Family Support Group news letter, and she is also the MSUD Chair in Canada.

Support the Show.

Maple Syrup Urine Disease defined
MSUD Vs Diabetes
Diagnosis journey with MSUD
Role as MSUD editor
Canada MSUD Plus Chair role
Role as Vice President of New England Connection For PKU and Alleid Disorders
Challenges for MSUD patients
Barriers to care for MSUD patients
Key areas of research
Future of MSUD Access to Nutritional Support and Resourdes
Success stories
Advice and resources for newly diagnosed MSUD patients
Hopes for the future