Nutrition Equity Episode 5: Eosiniphilia Artwork

Rare Connection

Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions are called horses. Doctors tend to learn a lot about the common conditions, but rare conditions are a paragraph in a text book at best because the medical field isn't looking at the whole picture. Rare conditions when combined are actually bigger than cancer and strokes combined and if you have a rare condition you most likely have more than one or will develop another within your lifetime. As someone with a rare condition myself (Homocystinuria or HCU), know that having a rare condition can be very lonely. Thereis normally a phsycological aspect to any rare condition, and because of lack of understanding they often go undiagnosed or misdiagnosed which can cause serious health consequences or even death. If you are interested in talking and feel comfortable on camera please contact me at joanna.ball41@gmail.com. I have a visual version of this podcast on YouTube also under my cooking channel Rare Chef.

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Rare Connection

Nutrition Equity Episode 5: Eosiniphilia

August 02, 2023 • Joanna • Season 1 • Episode 5

0:00 | 26:50

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Listen in as we talk with patient and biologist Aneta about Eosinophilia. Thanks to Aneta for doing this episode last minute because of a cancelation with the original person I was going to interview.

Chapter Markers

00:00 Intro
01:16 What is Eosinephilia? How has it Affected Annetta?
03:11 diagnosis
05:04 Medical foods, or formula?
05:17 Is Eosinephilia treatable with Stem Cells?
06:29 Why personalized nutrition is essential for people with Eosinephilia?
11:23 As a biologist How has your background influenced you understanding nutrition
13:09 how personalized nutrition has impacted Annetta's life
15:35 advice to other patients
20:56 How Eosiniphelia affects Annetta when her levels are high
22:43 how low levels affect Annetta
24:45 Is it Eosininephelia or an allergy?
25:37 Conclusion

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