Rare Connection

Nutrition Equity Episode 6: Tyrosinemia (TYR)

August 05, 2023 Joanna
Rare Connection
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In this episode of Nutrition Equity I talk with Andrew.  A Tyrosinemia patient.  Listen along as we learn about Andrew's battles with Tyrosinemia and what it is like to live with this rare condition.  Learn about the issues he and others have faced with getting medical foods and formula.  What it is like now vs When he was a child.  

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Journey to diagnosis
Changes since diagnosis
Medical Formula
difference between PKU and Tyrosinemia
Learning disabilities
Others with TYR
How TYR effects daily life
challenges
How The Medical Nutrition Equity Act would effect those with TYR
Coverage in Texas
How TYR patients can help with the passage of the MNEA
Personal stories
Advocate message to politicians
Normal level for TYR