This month is Homocystinuria (HCU) Awareness Month. Today I am joined by Danae Bartke the Executive Director of HCU Network America. Two of the three types of Homocystinuria would be covered if the Medical Nutrition Equity Act were to pass. Currently we are trying to get this crucial bill reintroduced into congress again. In this episode we will discuss the three types of Homocystinuria and the differences between them as well as the upcoming Externally Led Patient focused Drug Development Meeting later this month with the FDA which could potentially bring new treatment For Classical Homocystinuria. We will also talk about resources that may be of help. You can find out more about the bill by going to https://nutritionequity.org/
This month is Homocystinuria (HCU) Awareness Month. Today I am joined by Danae Bartke the Executive Director of HCU Network America. Two of the three types of Homocystinuria would be covered if the Medical Nutrition Equity Act were to pass. Currently we are trying to get this crucial bill reintroduced into congress again. In this episode we will discuss the three types of Homocystinuria and the differences between them as well as the upcoming Externally Led Patient focused Drug Development Meeting later this month with the FDA which could potentially bring new treatment For Classical Homocystinuria. We will also talk about resources that may be of help. You can find out more about the bill by going to https://nutritionequity.org/