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Primary Sclerosing Cholangitis,& Trigeminal Neuralgia

April 25, 2024 Joanna Season 2 Episode 7
Primary Sclerosing Cholangitis,& Trigeminal Neuralgia
Rare Connection
Chapters
2:34
Zebras vs horses
3:18
the switch from Nutrition Equity to Rare Connection
4:32
Primary Sclerosing Cholangitis (PSC) defined
5:08
no FDA treatment
5:24
The journey to diagnosis of PSC
9:44
Symptoms of PSC
12:50
emotional aspect how people treat christina
13:03
MRI
13:40
clinical trial for PSC
15:00
emotional aspect of PSC and maintaining hope
19:17
Speaking in Spoons how PSC receives support within the community
19:54
disability becomes chronic
22:28
Trigeminal Neuralgia journey to diagnosis
25:56
Trigeminal Neuralgia triggers
27:02
Treatment for Trigeminal Neuralgia and misdiagnosis
30:52
Navigating daily life
32:12
support for trigeminal neuralgia
33:31
additional treatments and therapies for Trigeminal Neuralgia
35:12
Advocating and educating about Trigeminal Neuralgia
39:55
Hemiplegic Migraines what it's like
46:10
Treatmentfor Hemiplegic Migraines
46:55
similar symptoms of conditions
49:16
educating and advocating for yourself
51:08
differences between a typical migrane and a hemiplegic migraine
53:57
social life
58:45
Advice to others
More Info
Rare Connection
Primary Sclerosing Cholangitis,& Trigeminal Neuralgia
Apr 25, 2024 Season 2 Episode 7
Joanna

Send us a Text Message.

In this episode I talk with Christina, Who is the host of Speaking in Spoons and a patient with Primary Sclerosing Cholangitis (PSC), Trigeminal Neuralgia and Hemiplegic Migraines.  

The aim of this podcast is to connect those with similar conditions, educate medical professionals, and hopefully help find treatments and clinical trials.

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Show Notes Chapter Markers

Send us a Text Message.

In this episode I talk with Christina, Who is the host of Speaking in Spoons and a patient with Primary Sclerosing Cholangitis (PSC), Trigeminal Neuralgia and Hemiplegic Migraines.  

The aim of this podcast is to connect those with similar conditions, educate medical professionals, and hopefully help find treatments and clinical trials.

Support the Show.

2:34
Zebras vs horses
3:18
the switch from Nutrition Equity to Rare Connection
4:32
Primary Sclerosing Cholangitis (PSC) defined
5:08
no FDA treatment
5:24
The journey to diagnosis of PSC
9:44
Symptoms of PSC
12:50
emotional aspect how people treat christina
13:03
MRI
13:40
clinical trial for PSC
15:00
emotional aspect of PSC and maintaining hope
19:17
Speaking in Spoons how PSC receives support within the community
19:54
disability becomes chronic
22:28
Trigeminal Neuralgia journey to diagnosis
25:56
Trigeminal Neuralgia triggers
27:02
Treatment for Trigeminal Neuralgia and misdiagnosis
30:52
Navigating daily life
32:12
support for trigeminal neuralgia
33:31
additional treatments and therapies for Trigeminal Neuralgia
35:12
Advocating and educating about Trigeminal Neuralgia
39:55
Hemiplegic Migraines what it's like
46:10
Treatmentfor Hemiplegic Migraines
46:55
similar symptoms of conditions
49:16
educating and advocating for yourself
51:08
differences between a typical migrane and a hemiplegic migraine
53:57
social life
58:45
Advice to others