Navigating Neurodivergence & Special Needs with Little Superheroes
Navigating Neurodivergence & Special Needs with Little Superheroes is dedicated to supporting families and caregivers of neurodivergent children. As a therapist and educator specializing in paediatric neurodevelopmental therapy—and a parent of a neurodivergent child myself—I created this podcast to share real-life experiences, expert insights, and practical strategies. Each episode dives into topics like ADHD, Autism, Anxiety, Dyslexia, and more, with the goal of helping parents feel more empowered, informed, and supported in their journey.
I firmly believe that every child is a little superhero, and this podcast is a space to celebrate their unique strengths and navigate the challenges they face. Through honest conversations and valuable resources, Navigating Neurodivergence & Special Needs with Little Superheroes aims to make the path a little clearer and provide a community where families can connect and thrive. 🌟
Tune in for inspiration, support, and guidance on your child's journey to growth and healing.
Navigating Neurodivergence & Special Needs with Little Superheroes
Unyielding Courage: Advocating for My Special Needs Child Against Medical Negligence
Do you know what it takes to stand up against medical negligence, especially when it involves your child? In this moving episode of the Jess Ngaheu podcast, Jess shares her profound journey of advocating for her special needs son, Hawaiki, against medical negligence. She discusses the relentless challenges and emotional struggles of securing the proper care and uncovering the truth about her son’s medical condition. This episode is a powerful exploration of parental advocacy, trust in intuition, and the hurdles of navigating the healthcare system with a special needs child.
Key Takeaways:
- Why Parental Advocacy is Non-Negotiable: Jess emphasises the critical role parents play in advocating for their child’s health, especially in complex medical situations.
- How Difficult is it to Access Medical Records? Jess discusses her struggles in obtaining Hawaiki's medical records, highlighting systemic issues in healthcare communication.
- What Happens When Diagnoses Go Wrong? The episode covers the initial misdiagnosis of Hawaiki's condition and the devastating impact of discovering the truth about his severe brain damage.
- Importance of Legal Battles for Justice: Jess talks about the ongoing court case for medical negligence, showing the legal complexities when fighting for a child’s rights.
- Trusting Your Gut: The story reinforces trusting one's intuition as a parent when it comes to the well-being of a child.
Chapters:
(01:17) Struggle for Medical Records: Challenges faced in obtaining Hawaiki's medical records and the importance of documentation.
(02:39) Diagnosis and Heartbreak: Initial diagnosis, the emotional impact of learning the truth about Hawaiki’s condition.
(07:41) Advocacy Beyond the Hospital: Experiences with Jetstar regarding accommodations for Hawaiki, demonstrating broader advocacy beyond medical settings.
(13:40) Hospital Challenges and Ryan’s Rule: Detailed experiences in the hospital, including invoking Ryan's Rule due to inadequate care.
(20:20) Facing the Truth and Ongoing Legal Battle: Discussing the lawsuit and the determination to fight for Hawaiki’s future.
Quotes:
- "If you feel there's something wrong, there definitely is something wrong. No one can ever tell you any different."
- "You are the greatest expert on your child, not a GP, not a doctor, not even someone that specialises in that field."
- "It is heart-wrenching finding out those details, but thank Christ, I'm fighting for him with this lawsuit."
New Therapy Slots Available: Due to popular demand, we opened up an extra day at her practice in Oxenford, offering revolutionary therapies for neurodivergent children. Limited spots available—click this link to inquire https://www.halaxy.com/book/little-superheroes/location/1140031
Consultation & Training Services: We also offer consultation and training services to childcare centres and schools with special needs departments. If you know anyone who could benefit, please contact us 0410 053 611 / admin@littlesuperheroes.com.au
Connect with us:
- www.littlesuperheroes.com.au
- Instagram: https://www.instagram.com/littlesuperheroes_/
- Facebook: https://www.facebook.com/profile.php?id=100085361951225
Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6
For inquiries, guesting opportunities, or collaborations, reach out to us at admin@littlesuperheroes.com.au