Emotional Resilience in Pediatric Health Crises: Hawaiki’s Ongoing Battle

How do you navigate the intense emotional and medical complexities of caring for a child with serious health issues?

In today's episode of the Jess Ngaheu Podcast, we dive back into the deeply emotional and challenging medical journey of Hawaiki. Jess opens up about the immense challenges her family has faced while navigating the complex medical landscape for her son, Hawaiki. From managing an overwhelming number of specialists and diagnostic tests to integrating life-sustaining medical equipment at home, Jess details the day-to-day realities that test their strength and resilience. She shares the harrowing experiences of emergency hospital visits and the critical decision-making processes they undergo for serious medical procedures. 

Despite the constant fear and uncertainty, Jess discusses how they manage to maintain their spirits and the importance of emotional resilience in such trying times. Additionally, Jess introduces her new venture, Little Superheroes, a pioneering initiative aimed at providing innovative brain therapy for children with special needs, designed to enhance their lives beyond conventional treatments.

 Key Takeaways:

1. Resilience in the Face of Uncertainty: Learn how Jess copes with the stress and uncertainty of severe medical diagnoses and treatments.
2. Importance of Advocacy: Understand the critical role of advocating for your child’s needs in complex medical situations.
3. Support Networks: Discover the value of a supportive community, including family, friends, and medical professionals.
4. Informed Decision Making: Jess emphasizes the importance of being well-informed about medical options and procedures.
5. Finding Gratitude: Despite the hardships, Jess shares how finding moments of gratitude helps her family cope.

Powerful Quotes from Jess:

• "It was so emotionally taxing not knowing like you're in this fight or flight, what is going on with my baby."
• "When you're watching your child go to sleep for surgery, you also don't know if they're coming back."
• "I wouldn't let them put him to sleep without me being there and I wouldn't let them put him to sleep without me singing to him so he could hear my voice."
• "I remember thinking, why is this happening? But then it came to me, we were the lucky ones because our little boy was still alive."
• "We've been thrown right in the deep end after your son has just had his first brain surgery."

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