Everything Cancer

Part 1 - Dr. Alique Topalian, PhD, MPH: Legislative and Academic Warrior for All Cancer Survivors, Pediatric and AYA Cancer Survivor and Thriver

May 21, 2024 Jill Squire, Oncology Certified Nurse Episode 17
Part 1 - Dr. Alique Topalian, PhD, MPH: Legislative and Academic Warrior for All Cancer Survivors, Pediatric and AYA Cancer Survivor and Thriver
Everything Cancer
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Everything Cancer
Part 1 - Dr. Alique Topalian, PhD, MPH: Legislative and Academic Warrior for All Cancer Survivors, Pediatric and AYA Cancer Survivor and Thriver
May 21, 2024 Episode 17
Jill Squire, Oncology Certified Nurse

Episode Description:

In this first part of our interview with Dr. Alique Topalian, we explore her incredible journey as both a pediatric and young adult cancer survivor. Dr. Topalian shares her experiences with self-advocacy, the challenges of finding a bone marrow match, and her involvement in bio-marker insurance coverage legislation. 

She discusses her shift from psychiatry to Health Promotion Education in oncology. 

Tune in for an inspiring and informative conversation.

Key Topics:

- Dr. Alique Topalian's early diagnosis and treatment for acute myeloid leukemia.

- The significance of biomarker testing in her treatment plan.

- Challenges faced in finding a bone marrow match and the importance of donor registries.

- The role of supportive services like The Gathering Place in her recovery.

- Legislative advocacy for biomarker testing and copay assistance program transparency.

 

Highlights:

- [00:00] Introduction: Overview of Dr. Topalian's journey and the focus of her advocacy work.

- [01:32] Early Diagnosis: Dr. Topalian's diagnosis with acute myeloid leukemia at age four and her treatment journey.

- [03:32] Relapse and Biomarker Testing: The role of biomarker testing in her treatment after a 22-year remission.

- [05:02] Career Transition: Moving from psychiatry to cancer survivorship and supportive services.

- [08:32] Supportive Services: The impact of The Gathering Place and supportive services on her recovery.

- [11:15] Advocacy Journey: Dr. Topalian's involvement in cancer advocacy and her legislative efforts.

- [18:57] Biomarker Testing Advocacy: The importance of biomarker testing and the barriers to access she is working to overcome.

Dr. Topalian’s LinkedIn LinkedIn.com/in/alique-topalian-phd-mph


Next Episode Teaser:

Join us for the second part of our interview with Dr. Alique Topalian, where we delve deeper into her legislative advocacy efforts, the how she has met the challenges of navigating healthcare costs and AYA cancer survivorship.

Slower

Support the Show.

Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond"

Thank you.

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Show Notes

Episode Description:

In this first part of our interview with Dr. Alique Topalian, we explore her incredible journey as both a pediatric and young adult cancer survivor. Dr. Topalian shares her experiences with self-advocacy, the challenges of finding a bone marrow match, and her involvement in bio-marker insurance coverage legislation. 

She discusses her shift from psychiatry to Health Promotion Education in oncology. 

Tune in for an inspiring and informative conversation.

Key Topics:

- Dr. Alique Topalian's early diagnosis and treatment for acute myeloid leukemia.

- The significance of biomarker testing in her treatment plan.

- Challenges faced in finding a bone marrow match and the importance of donor registries.

- The role of supportive services like The Gathering Place in her recovery.

- Legislative advocacy for biomarker testing and copay assistance program transparency.

 

Highlights:

- [00:00] Introduction: Overview of Dr. Topalian's journey and the focus of her advocacy work.

- [01:32] Early Diagnosis: Dr. Topalian's diagnosis with acute myeloid leukemia at age four and her treatment journey.

- [03:32] Relapse and Biomarker Testing: The role of biomarker testing in her treatment after a 22-year remission.

- [05:02] Career Transition: Moving from psychiatry to cancer survivorship and supportive services.

- [08:32] Supportive Services: The impact of The Gathering Place and supportive services on her recovery.

- [11:15] Advocacy Journey: Dr. Topalian's involvement in cancer advocacy and her legislative efforts.

- [18:57] Biomarker Testing Advocacy: The importance of biomarker testing and the barriers to access she is working to overcome.

Dr. Topalian’s LinkedIn LinkedIn.com/in/alique-topalian-phd-mph


Next Episode Teaser:

Join us for the second part of our interview with Dr. Alique Topalian, where we delve deeper into her legislative advocacy efforts, the how she has met the challenges of navigating healthcare costs and AYA cancer survivorship.

Slower

Support the Show.

Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com

The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions.

Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website.

Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years!
www.H2Ocean.com
www.Chemo-Mouth.com
Sea Salt Healing Rinse
https://h2ocean.com/oral-care/

Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond"

Thank you.