In this episode, hosts Drs. Jason Silverman and Peter Lu sit down with Dr. Vicky Ng to discuss outcomes following pediatric liver transplantation beyond survival. In particular, we review the importance of hearing the patient voice using the PeLTQL, a disease-specific health related quality of life instrument.

Dr. Ng is a Professor of Pediatrics at the University of Toronto, Medical Director of the Paediatric Liver Transplantation Transplant and Regenerative Medicine Centre at SickKids Hospital and current President of NASPGHAN.

Learning objectives:

1. To understand the benefits of developing a condition-specific health-related quality of life (HRQOL) tool using the Pediatric Liver Transplantation Quality of Life questionnaire (PeLTQL) as a model.
2. To review pre- and post-transplant factors that may impact the HRQOL of pediatric liver transplant recipients.
3. To explore the benefits of the patient (and caregiver) voices in truly understanding important patient outcomes.

Links:

1. Development and Validation of the Pediatric Liver Transplantation Quality of Life: A Disease-Specific Quality of Life Measure for Pediatric Liver Transplant Recipients
2. Barriers to ideal outcomes after pediatric liver transplantation
3. Feasibility of using a patient-reported outcome measure into
   clinical practice following pediatric liver transplantation: The
   Starzl Network experience
4. Jennifer Vittorio - Healthcare Transitions in Pediatric Liver Transplantation (Special JPGN Episode) - Position paper

Support the show

This episode may be eligible for CME credit! Once you have listened to the episode, click this link to claim your credit. Credit is available to NASPGHAN members (if you are not a member, you should probably sign up). And thank you to the NASPGHAN Professional Education Committee for their review!

As always, the discussion, views, and recommendations in this podcast are the sole responsibility of the hosts and guests and are subject to change over time with advances in the field.

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