Brave Together Parenting: a podcast for parenting disabilities and unique needs.

STORY: Moving Through Disability Parenting Like a Dancer with Joanne De Simone

Jessica Patay Season 7 Episode 188

Hello Brave Friends! Welcome to today's story episode, #188. These are true stories from a moment in the life of a caregiving parent. We hear a crafted story, and then have a conversation with our guests that goes deeper into their experience.

Today's guest is Joanne De Simone, and she's a graduate of Hunter College in New York with degrees in dance and special education. She has two sons, one with a rare brain malformation and one on the autism spectrum. She’s also an author with a book out now called Fall and Recovery: Raising Children with Disabilities through Lessons Learned in Dance.

The story she shares is about her experience being in public with her child on the autism spectrum. There are so many things that we love about Joanne's story but one big one is that this is a moment so many of us can relate to. We've all been in public and we've seen that stranger scowl. Haven't we? We've all experienced that incredible discomfort when our child starts to melt down, act out, or just act in the way that they act that's different from everyone else. 

Our interview goes deep into Joanne's journey, working with the school district to get the right services for her children. She has some really great insights, being a special educator herself about how to talk to educators. She also shares about how the lessons she learned in dance can be applied to her life as a caregiver today. I really think you’re going to get a lot out of our conversation. Please enjoy!


Find Joanne DeSimone’s book Fall and Recovery: Raising Children with Disabilities through Lessons Learned in Dance. here.


Thank you to our BIG, beautiful 5k sponsors!! Our TOP sponsors that we want to acknowledge and appreciate are: RISE Advocacy, GHJ Foundation, Torrance Memorial Medical Center, CMS Creative Management, Inc., the Patay Family and MRM Education. We are so grateful to these generous sponsors and so excited about our 5K, which will be accessible and truly a family friendly event! Learn more about our 5K here.


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Brave Together is the podcast for We are Brave Together, a not-for-profit organization based in the USA. The heart of We Are Brave Together is to strengthen, encourage, inspire and validate all moms of children with disabilities and other needs in their unique journeys. 

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Feel free to contact Jessica Patay via email: jpatay@wearebravetogether.org

If you have any topic requests or if you would like to share a story, leave us a message.