Making the Most of Now
The podcast brings together the Multifocal Motor Neuropathy community to discuss this rare neurological condition and related ones. We talk to medical experts, patients and their supporters in the hope of informing and inspiring.
Podcasting since 2023 • 18 episodes
Making the Most of Now
Latest Episodes
Dr Jeff Allen - A deep dive into MMN
A true deep dive into MMN with Dr Jeff Allen, one of the worlds leading experts in the field of inflammatory neuropathies and head of the GBS|CIDP Foundation International Global Medical Advisory Board. Jeff is lead author of a rec...
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Season 2
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Episode 8
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56:37
Edward Gent - Tackling a marathon when you have MMN - why it's a team sport
Edward Gent joins me to discuss his recent foray into marathon running as part of the Ride for MMN and MMN Awareness Month. Edward had never attempted anything like this before his diagnosis with MMN, so it was a real step into the...
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Season 2
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Episode 7
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1:21:38
Lynn Rogers - Research Scientist and Triathlete on life with CIDP
In this episode I chat with Lynn Rogers about her life with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Lynn is a research scientist who in 2017 found herself experiencing pain and loss of movement that saw her being admitted to h...
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Season 2
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Episode 6
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2:18:22
Rich Collins - Bringing New Energy to GBS, CIDP and MMN in the UK
In this episode recorded at the start of GBS|CIDP Awareness Month I chat to Rich Collins CEO at GAIN Charity in the UK. GAIN stands for Guillain-Barré Syndrome & Associated Inflammatory Neuropathies. It is the only charity dedi...
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Season 2
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Episode 5
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1:16:58
Nancy Di Salvo - Connector Across Continents
In this episode of the podcast I chat to Nancy Di Salvo Director of International Affairs at the GBS|CIDP Foundation International. A truly remarkable woman Nancy has has lived through two bouts of Guillain Barre Syndrome (GBS) and with Chronic...
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Season 2
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Episode 4
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1:18:17